I haven't posted anything on my blog for a few days, because it's been busy week and I found that was I tired in the evenings.
And also, I've been Thinking, which can also be Very Tiring! There have been a number of 'incidents', shall we call them, with my oxygen support, all self-inflicted.
Things like
forgetting to turn up the flow rate when I take the stair lift up to go to the loo
forgetting to turn up the flow rate when I go to the kitchen to make a cup of tea or start cooking a meal
not paying attention to how much oxygen I have left in a cylinder, so part way through a zoom call I start wondering why I am suddenly feeling so desperately in need of a nap
hanging the end of the oxygen canula off the back of a patio chair so I can risk taking several steps to the compost bin to empty the kitchen scraps bin, because the canula doesn't quite reach that far
nipping over from the table to the the settee to fetch my cardigan and putting it on as I sit don to finish what I am doing, without adjusting the flow rate up, and then back down again
forgetting to turn the flow rate down after I have made my porridge and before I sit at the table to eat it!
I am driving myself crazy!
What is going on?
Bear in mind that, at rest and at night I need an oxygen flow rate of 1 litre per minute, for mild physical activity such a getting dressed, having a bath or shower, making a cup of tea or gently cooking a meal, I need around 5-6 litres per minute, and for walking 7 or 9 litres per minute depending on terrain. When walking outdoors I also need to pause and catch my breath every 100-150 steps or so, depending on the uphill or downhill slope!
I think it's a form of rebellion against the whole (adjective removed) business of being dependent on oxygen support, and also a kind of frustration at how quickly my oxygen levels plummet upon any kind of exertion. It's very trying that bending down to adjust the flow rate on the oxygen concentrator uses even more oxygen! The good thing is that I recover very quickly; usually within a couple of minutes or less once I stop moving.
'Just pace yourself', they told me at the clinic. Well, yes, jolly good advice. 'You try it,' I snarled back, but luckily in my 'inside' voice, while maintaining an intelligent and receptive (I hope) look on my face.
This happens to me every so often; I maintain an attitude of acceptance, and gratitude for the life changing, life enhancing effect of having oxygen support - you should have seen me two years ago almost weeping from exhaustion at the end of the day from just the effort of breathing to keep my oxygen SATs somewhere around 87%, and going to bed early just so I could hook up to the overnight oxygen I was allowed to have.
So I have to stop, and reflect, and notice that I am being rebellious and stroppy and - let's face it - rather silly and irresponsible, even if subconsciously, and start behaving better! I've had a word with myself, as they say, and going to pay more attention to what I do and how.
It's not just me that is being hurt by my behaviour, but also BB, who has to continually rescue me from my escapades, and what while I sit there gasped like a landed fish while my oxygen levels come back up to what they should be. It's just not fair on him - am I listening? Yes..... until next time....
Cheerfulness, gladness, gratitude and a more mature frame of mind have been resumed.